Dr Foot Discussion

[maxine66]

I have searched the web desparatly trying to find someone whos child had cvt for the past 18 months, what a relief to find this site, I was starting to think I was the only 1.
my son is 18 months old, when he was born i noticed his feet wernt looking right, when the pediatrician checked him over i waited till she had finished to see if she noticed anything she didnt so i ask her to check his feet, she did then ask if this was my 1st child, i said no my 3rd but if he was my 1st id still be asking for you to look at them again. i insisted and she called another dr, as soon as he looked at his feet he said i think he has cvt, he did explain a bit about it but was quiet vauge.
I was dumfounded, we were sent home with an appointment for 2 weeks time.
i searched the internet and library but it was quiet hard to find out very much.
we went to the ponsetti clinic in chelsea and westminster hospital and he was casted for 4 months, then an op to release tendons and pins, further casting and splints over the past year and now we are due an appointment end of august where another op seems iminant but only on 1 foot as the ponsetti treatment has worked on the other foot. all of which my baby has taken with a pinch of salt, nothing seems to stop him and his now walking and climbing everywhere. everyone was very nice and helpfull in the clinic but I still didnt have all the answers i wanted and wonder maybe i never will.
I am so sorry this message is so long but this is the 1st time iv spoken to people who actually know what im talking about. i hope someone gets back to me.
so glad I have found you.

[zxz909]

Hi
I am from India. Last week my daughter was diagnosed of CVT. She is one year old. I found this site helpful in giving confidence that the child will be fine after treatment. I will post updates.Actually i was horrified to read the info on CVT on the net, but it is relief to know the info from the patients that it is rectifiable mostly.
Regards

[zxz909]

Hi
Last Saturday my baby had first casting, this Saturday she will be having second casting.

[mo]

our baby who is now 5 months ended up being casted weekly up until his op last week (to insert the wires & cut tendons). the op was a success, left foot which is oblique tallis much easier than the right which was a lot trickier. the op a success and our surgeon very happy with results. go back in a week for a cast change then 5 weeks later back into theatre to get the wires out, after this it will be boots and bars. been a long slog, he is a wee star though and has coped fantastic. as this condition is so rare it was so difficult for us as like everyone else found not much or very positive info about it, good to hear others have come out the other end of this on a positive x

[richierich]

My son is coming up 6 and was diagnosed at birth. We've gone through the splints, serial casting, massaging of the foot and the operation to lengthen the tendon. To be honest you wouldn't know he had it just to look at him as he runs around like any other 5 year old. We did have one time he kept saying he didn't like PE of which took a while to get out of him why, which was becuase he could hop or tip toe like the other kids. However, when he puts his mind to it he can sort of hop. We informed the teacher of this and they somehow resolved it. But lately his leg has been aching and last week afer seeing the Consultant they have decided to get him in for another operation involving wiring the foot again in approx 2-3 months. On another note, my wife's brother has just had a baby ( his wife obviously or we'd be talking miracles ) and the baby has CVT aswell. My wife's step brother had a foot condition,,,,, club foot i beleive. Did know it was a hereditary condition.

[Doretha]

Hello everyone, I too wish that more info was provided on CVT back when my son was diagnosed by Children's Medical Center in Birmingham AL back in 1995. Although it started the same as a lot of your stories did, however, my coarse of action was a lot different. I was a young 21 year old scared new mom when I was faced with such a painful situation. I used stretching techniques like most of you and casting as well, but he hated being cast, he would cry a lot in the beginning but he adjusted to them. Surgery was scheduled but without adequate info from the surgeon and through research, I decided to wait. I stopped casting as well. Against medical advise I WAITED AND WATCHED. He was 13 months before he started walking, and when he did, he waddled. As time moved on, his feet started to flattend out. They were not normal, but on glance, you would not have noticed that he had CVT. He is 14 now. He was top runner in his elementary school, He's, currently A star on his middle school football team, he's recently made the highschool football and basketball team. He has been complaining of pain lately and he can't stand on his tip toe on the left foot, which was the worst foot. When he was a baby, his toes touched his chin, with a deep arch on the upperfoot, and a curved bottom foot. He still walks with a slight waddle but wears regular shoes, even sandals. I still worry did I DO THE RIGHT THING when he cmplain that his feet hurt, but from what I have read, even after surgery pain may still be apart of his life. By no means am I GIVING MEDICAL ADVISE, just wanted to share my story. I hope that this does not offend anyone that choose surgery as an option because your case may have been different than ours. Even in my son's case one foot was worst than the other. We still may choose surgery on one foot. It is really good to know that I am not alone, Thanks for sharing your stories. It really means a lot to me.